"I just wanted to say that I appreciate the stories that you place in the Lupus Beacon. Not having someone to physically talk to who understands totally is really hard. But reading the stories of other people helps me, because it's like "talking" to someone who understands. It gives me much encouragement. Thank you for this support system."

Sharon Harper
Beckley, WV

"I've read and reread my Beacons and filed them for future reference. The Lupus Beacon is helpful on many levels. It keeps us in touch with others with similar problems and helps to ward off the loneliness that comes with a disease that is so little understood.

Because the cause is not understood, we tend to keep things to ourselves, so its been great for me to read the articles by lupus patients openly expressing their frustrations, fears, tears, and humor.

Also, I am grateful for the practical tips. I would never have connected a dry mouth with the loss of gum tissue and eventual loss of teeth. My sincere thanks to you and your organization. Personally, I don't know how you do it all."

Ruth Sellers
Sunland, CA

"It is with great pleasure that I send this check for my dues, as without the Lupus Beacon life would be a lot more difficult.

I was diagnosed with lupus about four and a half years ago. It has been a struggle with numerous medications and many attempts to get off prednisone, all to no avail.

We never really know from day to day, but with the arrival of the Lupus Beacon, it becomes for a good day."

Martha Waye
Cornwall, NY

"Just had to write a note with my renewal this year to tell you how much I appreciate the work you do. I only wish I lived closer and could help!

Yours is by far the best lupus newsletter I receive. It contains a wonderful mix of research, opinion and personal experience--I always seem to find something that relates to me!"

Patti Reese
Ada, OK

Home

Lupus Club Story

Diagnosing Lupus

Benefits of Membership

Testimonials

Back Issues

Additional Information

Order Information

Email